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-   -   A tough weekend (http://www.knifenetwork.com/forum/showthread.php?t=69603)

Ed Caffrey 05-03-2021 07:10 AM

A tough weekend
 
Whew! What a difficult weekend. We had an abrupt weather change on Friday, the Lupus flaired up, and I spent Saturday balled up on the couch, and most of Sunday too.

I have an appointment with a kidney specialist this morning.... my last bloodwork showed some alarming results in a couple of areas.....areas that made my Rheumatologist suspect the Lupus in now affecting my kidneys....something they call "Lupus Nephritis". We'll see what this appointment finds. :banghead

bjmac 05-03-2021 08:56 AM

Come on Ed. You keep finding new stuff to break.
Knock it off, ok?

cdent 05-03-2021 02:59 PM

Hey Ed, keeping you and your gang in mind.

Ed Caffrey 05-03-2021 07:52 PM

Had that appointment today....and got a curveball thrown at me. The kidney specialist is setting me up for a kidney ultrasound and biopsy..... honestly, I kinda went numb after hearing "possible kidney failure" and "possible dialysis". Will find out more as the appointments come through.

bjmac 05-03-2021 07:58 PM

I'm praying for you again. Want me to post on kd for your friends there?

bjmac 05-03-2021 07:59 PM

I'm praying for you again. Want me to post on kd for your friends there?
Ps.. If you need to talk my #530 496 3388
Bruce

TexasJack 05-04-2021 02:26 AM

I thought you Montana boys thrived off of that nasty cold weather!

Ed Caffrey 05-04-2021 07:34 AM

I've always liked the cold weather! :) I was just one of the unlucky ones getting this Lupus stuff. I thought it was done with me after the Docs said "In your case Lupus has attacked your lungs, causing interstitial lung disease", but have since learned it got the name "Lupus" because it ravages one body part/system after another.

During the visit, the Doctor did say that he was a little confused because my last two blood tests showed the Lupus markers were showing normal, but the tests also showed my body "leaking" proteins, and those levels have gone up consistently over the last 5 months. From what he said, it's not a matter of IF there is kidney damage, it's a matter of determining the level of the damage. So, next up for Ed is a kidney ultrasound, and then a biopsy to determine where things are. Will let everyone know when I have some news. In the meantime, I appreciate the prayers!

Chris Railey 05-04-2021 09:30 AM

Our LORD Jehovah Rapha (The GOD who heals) please heal Ed in such a miraculous way that only you can receive the glory. Please let the doctors find nothing.

billyO 05-04-2021 09:52 AM

I pray that your suffering is brief and your recovery quick and full.

jimmontg 05-04-2021 12:08 PM

I have one kidney left Ed and it isn't 100%, more like stage two. I take co-q-10 and P-5-P co-enzyme of B6 or pyridoxal 5' phosphate the only active form of B6. It took me from stage four to two. My creatinine levels are almost normal. I would prefer not to do dialysis even at home, but you can do it at home. My neighbor does, it is call peritoneal dialysis and you do it while sleeping. I'm sure your nephrologist told you about it. She lives a normal life, so I thought you might like to know. I live on Oxygen 24/7 with my COPD and just got used to it.
May God bless you and your family while you go through this struggle.

M&J 05-04-2021 02:44 PM

Best and prayers for a favorable prognosis Ed.

fitzo 05-04-2021 08:17 PM

Good luck with it, Ed.

Doug Adams 05-05-2021 07:45 AM

Prayers for you Ed.

Gene Kimmi 05-05-2021 08:56 AM

Praying for you, Ed.


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